Category Archives: CSS

It’s Hard To Be Brave, When…

When you suddenly become sick with any illness you find yourself feeling very small.  Navigating the world of doctors, nurses and other medical personal is like entering a strange new world.  You find yourself losing your voice and unable to … Continue reading

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Giving Tuesday 2016

Diagnosing Churg Strauss (CSS) is difficult at best and nearly as hard as finding a unicorn at it’s worst.  Part of the problem is that Doctors may have never heard about CSS.  In a lot of medical textbooks it takes … Continue reading

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Asthma Treatment Medication

This is an informational post about Asthma medications and treatments.  Always consult a doctor before beginning, changing, or discontinuing any asthma treatment.  Asthma is a serious condition that without proper management  can lead to death.   I am NOT a medical … Continue reading

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June Churg Strauss Awareness Post

Gill , Essex, UK, aged 45 I was a very active child, teenager and adult who exercised regularly each week until about 26 years old. I wasn’t sick from school much, apart from contracting measles around 9 years old and … Continue reading

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Classic Churg Strauss Bingo

When I was first diagnosed and in the process of coming to terms with being chronically ill I wrote A LOT!   Now that I have started this blog,  I want to share some of those posts. Some posts are funny, … Continue reading

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Karen in CSS Land — My Pathway to Diagnosis

In the spirit of Vasculitis Awareness Month I am going to republish the story of my diagnosis with Churg Strauss Syndrome, a rare type of Vasculitis. This is my CSS story. The one I wrote when my world was all … Continue reading

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Immune system suppression and well meaning ‘friends’ — my rambling thoughts

Sometimes I read another person’s blog post that really hits home and want to share it with my followers since it is relevant to what we may be feeling or going through.   I would like to take a minute today … Continue reading

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Dr Torrano receives VF award

OK, we will first say that this picture makes me look heavier than what I actually am….   Yes, my vanity is the first thing I think of. Last Spring an opportunity came to nominate doctors to the Vasculitis Foundation for … Continue reading

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Is there true Remission in CSS Vasculitis?

I was asked  a question about remission and CSS in a FaceBook group and I’d thought I would re post my answer here so everyone could see it — it may not be the popular answer and I base my … Continue reading

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