Monthly Archives: July 2015

CSS awareness post August 2015 by Sheila Eddy

A NEW Churg Strauss Awareness Post for August is up and ready to be shared.  Read about Sheila’s Journey and how ‘The Cough’ lead her to her CSS diagnosis. Follow this link to Sheila’s journey….

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The Ugly Side of Competitive Chronic Illness

Is having a Chronic Illness really a competition?   Logically you would think not, but in some patients eyes it is… I can’t believe I even have to mention this happened in a Symposium for people with Vasculitis. I was … Continue reading

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Information from the Vasculitis Patient-Powered Research Network

FROM the Vasculitis Patient-Powered Research Network During the 2015 International Vasculitis Symposium we had the opportunity to connect with patients and their families. One of the questions we received about joining the Vasculitis Patient-Powered Research Network most often was about … Continue reading

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Kathryn tells her CSS/EGPA story

The July Awareness post is finally up and I hope you enjoy the CSS life story written by Kathryn.  She shows how CSS totally changed her life and the frustration of years of not knowing what is going on on … Continue reading

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