Diagnosing Churg Strauss (CSS) is difficult at best and nearly as hard as finding a unicorn at it’s worst. Part of the problem is that Doctors may have never heard about CSS. In a lot of medical textbooks it takes up less than a page. Diarrhea is more covered in medical textbooks than CSS and other types of Vasculitis.
We are rare. I fully understand that we may be only case our doctors ever see. Most of us end up in the hospital with some organ damage before diagnosis. Wouldn’t it be nice if more people could be diagnosed before organ damage? before lengthy hospital stays? before they have to numerous doctors all while feeling they are ‘making all their symptoms up’? Is there a way to better educate doctors about CSS and other Vasculitis diseases?
How much is it worth to you to educate doctors? How much would you be willing to give so doctors to know we are not such a rare anomaly? How much would you give to help doctors the knowledge to better manage our illness?
I ask these questions because you have a chance to help. You can make a difference.
The is sponsoring a class for doctors (aka CME class — doctors need to take so many of these per year to keep their licenses active). They are partnering with the Cleveland Clinic to offer such a class. It’s called, Primary Vasculitides: Best Practices and Future Advances. They need OUR help in order to make this happen. Would you be willing to give a few dollars to make this happen, especially on Giving Tuesday 2016?
It’s going to first originate as an in-person, one-time only presentation through the Cleveland Clinic next spring. They are going to record this entire session and then turn it into an online CME course that doctors anywhere can access and use. This makes it so once available online we can gently steer our doctors toward it.
Here is the link to the course information:
Educating ourselves about our illness has always been my #1 priority. So this opportunity to educate doctors is an easy donation for me to make. I understand our medical expenses are astronomical at times and we barely have a few dollars to spare but if you do this would be a great cause.
Share and post this to you wall. Can you imagine if just 1/4 of your friends and family gave $5 each what a difference this would make in helping to educate doctors. Imagine if someone you knew was looking for a great cause to donate to before the end of the year decided to give $100 or more? Don’t ever think small donations do not add up, they do! So, please think seriously about giving any amount to help educate doctors so that they can better help us and yet to be diagnosed patients. You do not have to wait till Tuesday to donate.
This post is easily shared though my Karen in Wonderland Facebook Page.
Also you are much better off donating to the Vasculitis Foundation than donating to dig a big hole.
Here’s the very easy to use direct donation link. Not the one to dig the hole.
Thank you, and with Education we have a better chance of better outcomes and better quality of life.
Posted in CSS by karen in wonderland with .