It is the 1st of the month and that means the posting of a NEW CSS awareness post. Here is Dawn’s Story of her journey to find a diagnosis and how years of asking doctors what could be wrong with her went unanswered.
I almost hate to say this is typical of CSS sufferers but since our symptoms are often overlooked as a combination of things (instead each treated individually) it is often hard to get a diagnosis so proper treatment can begin. The delay in diagnosis can mean the difference in quality and quantity of life. Since CSS is a chronic incurable illness we often find ourselves fighting for a sustainable quality of life in combating the inflammation that causes ‘flares’ and damage within our bodies. Ironically we tend to look Great on the outside… as some call it ‘fluffy’ from our steroid weight gain. Please read and share this story and the others in our awareness campaign. IF we could help people get earlier diagnosis by alerting their doctors we have succeeded.
Thank you once again for reading this blog and sharing. Next week is an exciting week as I attend the Vasculitis Foundation one day conference at Standford. I will be VERY busy taking notes and making them readable to post here for other vasculitis patients to read.