Podcasts, U-Tube and other videos on Vasculitis / Chronic Illness

The Prednisone song by The Singing Patient Carla Ulbrich

  • This is from the CD “Sick Humor,” which is all medical songs (parodies) about Carla’s adventures as a patient with a Chronic illness. Hey, ya gotta laugh or you’re either cry scream or strangle someone.

Vasculitis Awareness

  • At the beginning of 2012 a Vasculitis Foundation Video Project was announced. The purpose of this effort is to spread awareness by sharing vasculitis stories with others to highlight the impact these chronic conditions have on patients and their families.
  • This video highlights the first of several awareness videos that include vasculitis stories.

The Vasculitis Foundation presents: “Biomarkers and New Translational Research” by Dr. Peter Grayson

  • In this video, Dr. Peter Grayson discusses biomarkers and their role in treating vasculitis patients.

The Vasculitis Foundation presents: “Chronic Medical Effects of Vasculitis” by Dr. Philip Seo.

  • In this video, Dr. Seo examines some of the common chronic medical conditions that come with a diagnosis of vasculitis.  Published on Sep 22, 2014

The Vasculitis Foundation presents: “Research Results–Recap of the Past Two Years”, by Dr. Carol Langford.

  • In this video, Dr. Langford reviews some of the key research into vasculitis and what it means for patients.  Published on Sep 11, 2014

The Vasculitis Foundation presents: “Vascular Issues” by Dr. Emile Mohler

  • In this video, Dr. Mohler gives an overview of how the vascular system is affected by vasculitis.
  • Presented at the Vasculitis Foundation’s 2013 Symposium in Philadelphia, Pennsylvania.

Interpreting Lab Results for Vasculitis

  • What are some of the variables in ANCA testing for vasculitis?  Published on Aug 1, 2013

New Treatments in Vasculitis – Peter A. Merkel, MD, MPH – 3/19/2011

Vasculitis Mimics: Opportunities for Errors – Peter A. Merkel, MD MPH – 3/19/2011

  • These are  older presentations but I think a very good video on treatments options.  Dr Peter Merkel tells things with a unique sense of humor and he i a pioneer to many of us with vasculitis.

Churg Strauss Vasculitis, with Dr. Carol A. Langford

Ear/Nose/Throat in Vasculitis

recorded July 2010 Vasculitis conference in Long Beach  “Ear/Nose/Throat in Vasculitis”
Matthew L. Finerman, M.d., Otosurgical Group Medical Clinic.

Lung Issues for the Vasculitis Patient

recorded July 2010 Vasculitis conference in Long Beach  Ulrich Specks, M.D., Mayo Clinic.

The Vasculitis Foundation Presents: Dr. Christian Pagnoux

Published on Dec 5, 2013  In this exclusive interview with the Vasculitis Foundation, Dr. Christian Pagnoux talks about a range of topics mainly related to his involvement with key clinical trials in both Canada and France.

The Vasculitis Foundation presents: “Chronic Medical Effects of Vasculitis”

Published on Sep 22, 2014  The Vasculitis Foundation presents: “Chronic Medical Effects of Vasculitis” by Dr. Philip Seo.  In this video, Dr. Seo examines some of the common chronic medical conditions that come with a diagnosis of vasculitis.  Presented at the Vasculitis Foundation’s 2013 Symposium in Philadelphia, Pennsylvania.

What You Need to Know about Glucocorticoid-induced osteoporosis

If you’re taking Prednisone you likely are at risk for developing osteoporosis because the medication can directly and indirectly lead to bone loss.
When does the most bone loss occur when you’re taking Prednisone?
What is a DEXA scan and how often should you have it done?
What are the guidelines for taking calcium to offset the effects of GIO?
In this short clip, Dr. Philip Seo, shares information to help patients deal with one of the more common side effects from taking glucocorticoid medicines.

 

Meaghan and her CSS journey

Meghan started her CSS journey as a pediatric patient.  This video is part of the Vascuits Foundation’s awareness campaign.

 

Podcasts

mayologoMayo Clinic News podcasts on Vasculitis

logosmallThe UNC Kidney Center podcast page which contains some very good podcasts on ANCA associated vasculitis.    You will find educational information about Vasculitis in the first few podcasts.

 

 

 

 

 

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