Karen in WonderlandLiving Life with EGPA Vasculitis

CSS / EPGA Good Reads and Views

Here is my recommended reading list for CSS /  EPGA patients.   Many of these books are not CSS specific but relate to vasculitis, autoimmune illness, or chronic illness.

Pathway to Knowledge

(This is a ‘living’ page so check back often for new additions.  I will post on my blog when major additions are made)

***My #1 Recommended Read ***

****The Spoon Theory written by Christine Miserandino***

 VIDEOS

NewsLetters

Archives of the Vasculitis Foundation’s Newsletters

Books, Booklets, Hand Books and Pamphlets

Vasculitis Foundation’s  Patient Information Book — PDF 85 pages  (FREE)

For the Following books I give the Amazon.com links.  Please shop around if you plan on purchasing, I am not affiliated with Amazon.  It just is the site I use for most of my book purchases.

Online Articles and CME units

Note: with any article you should be aware of the publication dates.   New advances in diagnosis and treatment may have changed since the publication of the article, web page, or case report.

1. Psychological Aspects of Vasculitis — Editorial, Rheumatology 2000 — PDF file
2. Boon and bane of remission induction with rituximab in ANCA-associated vasculitis: lessons learned from the RAVE-ITN follow-up study — 2014 — PDF file
3. EGPA: early diagnosis is better by Christian Pagnoux, MD –June 2013 — PDF format
4. Eosinophilic Granulomatosis with Polyangiitis by Carmen E. Gota, MD (CME online from Cleveland Clinic)
5.  New Directions in Small Vessel Vasculitis – ANCA, Target Organs, Treatment, and Beyond  — Webcast and Journal Supplement Series — Cleveland Clinic CME series
6. Uncommon Vasculitides: Vasculitis Mimics by Atul Khasnis, MD — Cleveland Clinic CME
7. Vasculitis Disease Activity Scoring
8. Vasculitis Damage and Activity Indices
9. 2012 Revised International Chapel Hill Consensus Conference Nomenclature of Vasculitides – PDF   (HTML version here)
10. Oxford Textbook of Vasculitis
11. Just in Time Medicine — Michigan State University — CSS/EPGA
12. Churg-Strauss Syndrome: Evolving Concepts

13. Rituximab in the treatment of refractory or relapsing eosinophilic granulomatosis with polyangiitis PDF – 2013

14. Eosinophilic granulomatosis with polyangiitis — Epocrates (really good medical site) 2014

15. Eosinophilic granulomatosis with polyangiitis (Churg-Strauss): Clinical characteristics and long-term followup of the 383 patients enrolled in the French Vasculitis Study Group cohort –December 2012

16. Biomolecular markers in assessment and treatment of asthma — April 2014

17. Eosinophils in vasculitis: characteristics and roles in pathogenesis by Paneez Khoury, Peter C. Grayson & Amy D. Klion — 2014

18. Key advances in the clinical approach to ANCA-associated vasculitis by Cees G. M. Kallenberg 2014
19. Vasculitis: determinants of disease patterns by Gary S. Hoffman & Leonard H. Calabrese 2014
    

20. Why is effective treatment of asthma so difficult? An integrated systems biology hypothesis of asthma — June 2009

21. Vasculitis and the dental team — June 2013

22. Pathogenesis of antineutrophil cytoplasmic autoantibody-mediated disease by J. Charles Jennette & Ronald J. Falk – July 2014
23. Key advances in the clinical approach to ANCA-associated vasculitis by  Cees G. M. Kallenberg 2014

24. Successful outcome of pregnancy in patients with anti-neutrophil cytoplasm antibody–associated small vessel vasculitis – 2014

25. Serum biomarkers are similar in Churg–Strauss syndrome and hypereosinophilic syndrome — July 2012

26. Cardiac involvement in Churg-Strauss syndrome — Feb 2010

27. Eosinophilic pneumonias — 2005 (an older article but an interesting read….)

28. Eosinophilic granulomatosis with polyangiitis (Churg–Strauss): State of the art — January 2013

29. How do we Diagnose Vasculitis?(nomenclature/classification, clinical,laboratory, imaging, biopsy)  David G I Scott Norfolk and Norwich University Hospital — PDF – Slide presentation – 2012

    30. Ear, nose, and throat involvement in eosinophilic granulomatosis with polyangiitis by  Corisande Baldwin¹, Nikolaus Ernst Wolter² and Christian Pagnoux^{1*    April 2015}

    CSS / EPGA Case Studies

    Churg Strauss Syndrome #1  — June 2009

    Churg Strauss Syndrome #2 – July 2011

    Churg Strauss Syndrome #3Churg Strauss Syndrome #4

More Articles and Sites (updated 1/23/2016)

Although there are many abstracts (summaries) of articles on CSS/EGPA, I try to only post full text article links here which are free.

Nucala®(mepolizumab) injection for subcutaneous use Prior Approval Criteria.  Here’s a little something I found that talks about what you need to qualify for Nucala — according to Medical Mutual (an insurance company in Ohio)   and Here is one from Anthem Blue Cross / Blue Shield.

One more on Nucala / Mepolizumab – Institute for Clinical and Economic Review, 2015 Mepolizumab (Nucala®, GlaxoSmithKline plc.) for the Treatment of Severe Asthma with Eosinophilia: Effectiveness, Value, and Value Based Price Benchmarks.   Draft Report December 21, 2015

Rituximab in the treatment of refractory or relapsing eosinophilic granulomatosis with polyangiitis (Churg-Strauss syndrome)   Full article / German Study / 2013

Rituxan May Be New Treatment Option in EGPA
High rates of improvement and reduced need for prednisolone in eosinophilic granulomatosis with polyangiitis.  2014