Here is my recommended reading list for CSS / EPGA patients. Many of these books are not CSS specific but relate to vasculitis, autoimmune illness, or chronic illness.
(This is a ‘living’ page so check back often for new additions. I will post on my blog when major additions are made)
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****The Spoon Theory written by Christine Miserandino***
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VF Extraordinary CSS / EGPA Stories. This collection of extraordinary stories showcase patients diagnosed with Eosinophilic Granulomatosis with Polyangiitis (Churg-Strauss Syndrome). These videos were produced for the Vasculitis Foundation by Ed and Mary Becker.
Gulābpura dating cafe kostenlos reisen NewsLetters
Archives of the Vasculitis Foundation’s Newsletters
http://madeleinedenis.com/2202-cs29254-online-casino-echtgeld-vergleich.html Books, Booklets, Hand Books and Pamphlets
Vasculitis Foundation’s Patient Information Book — PDF 85 pages (FREE)
For the Following books I give the Amazon.com links. Please shop around if you plan on purchasing, I am not affiliated with Amazon. It just is the site I use for most of my book purchases.
Inflammatory Diseases of Blood Vessels Hardcover – July 2, 2012
Reaching Beyond The Clouds: From Undiagnosed To Climbing Mt. Everest Paperback – August 2, 2011
Coping with Prednisone, Revised and Updated: (*and Other Cortisone-Related Medicines) Paperback – December 10, 2007
Oxford Textbook of Vasculitis (Oxford Textbooks in Rheumatology) Hardcover – April 20, 2014
Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness (New Edition) Nov 19, 2012
Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties Paperback – June 24, 2008
A Delicate Balance: Living Successfully With Chronic Illness Paperback – July 1, 2000
Patient: The True Story of a Rare Illness Hardcover – April 1, 1997
You Don’t Look Sick!, Second Edition: Living Well With Chronic Invisible Illness Paperback – December 17, 2012
After the Diagnosis: Transcending Chronic Illness Hardcover – August 17, 2010
Chronic Inspiration: Heartfelt Perspectives on Life with Chronic Illness Jun 2, 2014
Good Days, Bad Days: The Self and Chronic Illness in Time Paperback – September 1, 1993
citas con chicas cordobilla de lácara Online Articles and CME units
Ceuta rollag gay dating Note: with any article you should be aware of the publication dates. New advances in diagnosis and treatment may have changed since the publication of the article, web page, or case report.
- Psychological Aspects of Vasculitis — Editorial, Rheumatology 2000 — PDF file
- Boon and bane of remission induction with rituximab in ANCA-associated vasculitis: lessons learned from the RAVE-ITN follow-up study — 2014 — PDF file
- EGPA: early diagnosis is better by Christian Pagnoux, MD –June 2013 — PDF format
- Eosinophilic Granulomatosis with Polyangiitis by Carmen E. Gota, MD (CME online from Cleveland Clinic)
- New Directions in Small Vessel Vasculitis – ANCA, Target Organs, Treatment, and Beyond — Webcast and Journal Supplement Series — Cleveland Clinic CME series
- Uncommon Vasculitides: Vasculitis Mimics by Atul Khasnis, MD — Cleveland Clinic CME
- Vasculitis Disease Activity Scoring
- Vasculitis Damage and Activity Indices
- 2012 Revised International Chapel Hill Consensus Conference Nomenclature of Vasculitides – PDF (HTML version here)
- Oxford Textbook of Vasculitis
- Just in Time Medicine — Michigan State University — CSS/EPGA
- Churg-Strauss Syndrome: Evolving Concepts
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Rituximab in the treatment of refractory or relapsing eosinophilic granulomatosis with polyangiitis PDF – 2013
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Eosinophilic granulomatosis with polyangiitis — Epocrates (really good medical site) 2014
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Biomolecular markers in assessment and treatment of asthma — April 2014
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Eosinophils in vasculitis: characteristics and roles in pathogenesis by Paneez Khoury, Peter C. Grayson & Amy D. Klion — 2014
- Key advances in the clinical approach to ANCA-associated vasculitis by Cees G. M. Kallenberg 2014
- Vasculitis: determinants of disease patterns by Gary S. Hoffman & Leonard H. Calabrese 2014
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Why is effective treatment of asthma so difficult? An integrated systems biology hypothesis of asthma — June 2009
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Vasculitis and the dental team — June 2013
- Pathogenesis of antineutrophil cytoplasmic autoantibody-mediated disease by J. Charles Jennette & Ronald J. Falk – July 2014
- Key advances in the clinical approach to ANCA-associated vasculitis by Cees G. M. Kallenberg 2014
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Serum biomarkers are similar in Churg–Strauss syndrome and hypereosinophilic syndrome — July 2012
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Cardiac involvement in Churg-Strauss syndrome — Feb 2010
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Eosinophilic pneumonias — 2005 (an older article but an interesting read….)
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Eosinophilic granulomatosis with polyangiitis (Churg–Strauss): State of the art — January 2013
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How do we Diagnose Vasculitis?(nomenclature/classification, clinical,laboratory, imaging, biopsy) David G I Scott Norfolk and Norwich University Hospital — PDF – Slide presentation – 2012
CSS / EPGA Case Studies
Churg Strauss Syndrome #1 — June 2009Churg Strauss Syndrome #2 – July 2011
More Articles and Sites (updated 1/23/2016)
Although there are many abstracts (summaries) of articles on CSS/EGPA, I try to only post full text article links here which are free.
Nucala®(mepolizumab) injection for subcutaneous use Prior Approval Criteria. Here’s a little something I found that talks about what you need to qualify for Nucala — according to Medical Mutual (an insurance company in Ohio) and Here is one from Anthem Blue Cross / Blue Shield.
One more on Nucala / Mepolizumab – Institute for Clinical and Economic Review, 2015 Mepolizumab (Nucala®, GlaxoSmithKline plc.) for the Treatment of Severe Asthma with Eosinophilia: Effectiveness, Value, and Value Based Price Benchmarks. Draft Report December 21, 2015
Rituximab in the treatment of refractory or relapsing eosinophilic granulomatosis with polyangiitis (Churg-Strauss syndrome) Full article / German Study / 2013
Rituxan May Be New Treatment Option in EGPA
High rates of improvement and reduced need for prednisolone in eosinophilic granulomatosis with polyangiitis. 2014